stuff is cool

Yesterday was a looong day at the doctor’s office as I received my first IV of Remicade, which took 3 hours, and then an hour’s worth of steroids on top of that.

I was miserable all weekend, but Sunday was the worst. When I woke up on Sunday, I warned Danny through gritted teeth that it was going to be a “difficult day.” And it was. Poor Danny.

I thought the worst of it was over last night, because I really did start to feel better, thanks to the steroids. Danny was all smiles and I was relaxed and comfortable at last.

Until I woke up around 6 this morning in the worst pain yet! Not just my back, but every inch of every bone was aching. I was trembling and sobbing. I gulped down two vicodin (the doctor said it was ok) and Danny held me till I stopped shaking. He stayed home with me for the first few hours. During that time, I spoke to my doctor’s nurse and they prescribed a heavy-duty painkiller patch. The narcotic was so strong they weren’t allowed to just call in the prescription to CVS. My sweet Danny drove all the way past the Med Center to Dr. Rubin’s office pick up the written prescription, then had to go to 3 CVS pharmacies before he found on that even carried the patch.

The patch takes 12 hours to start actually reliving pain, and I put it on at 8-ish tonight. Hopefully it’ll kick in in time enough that I won’t have another morning like this morning. The patch stays on three days, then I put on a new one. I put this first one on the inside of my right arm, because I had no idea where the best spot would be. This might even be the best spot. I already forget its there. Hopefully, it’s quietly doing its work this very minute.

Thanks for your well-wishes.

On Thursday I am going to the anointing of the sick mass at St. Cecilia’s, my family’s church. I gotta cover all the bases!

Oh, and can I just say, the lacy cravat Danny wore at Halloween showed the world how much he loves me, but his actions in the last few days in particular show me that he might love me even more than I thought he did. Which was lots already. And I love him with all my heart. I wish I could repay him. I’ll spend my life trying.